I want to write a little story about the challenges with Alzheimer’s and my mother’s everyday life that we faced for a long period of her life, before she became so ill that she came under municipal care.
I am one of those who have experienced that my mother just disappeared further and further into herself, and what difficulties it represented when I, as the main relative, would try to help her in her everyday life.
My mother was diagnosed in 2013, but she managed so well that she could live in her cozy apartment, which became her little paradise.
But unfortunately the memory disappeared more and more as time went on, and I was trying to help her as best as I could, both with medication, doctor visits, glasses / lenses and everything else.
What I experienced was that despite authorizations, it became very difficult to have insight in, for example, which medicines she should take and when she should take them.
Time and time again she stood at the pharmacy to get her medication from her prescriptions, but did not know which ones she should get. And the pharmacist only saw a long list of medicines on the prescription, so they could not help her.
I was added to the official heath site in Norway as a relative, and tried to find out something there, but it was almost impossible to orientate myself in this professional language area.
The same regarding her vision. She started putting away glasses in various places, but I did not know her visual acuity, so it was difficult to buy new ones. She did not remember the strength herself.
Eventually she got in to the municipal healthcare service for elderly suffering from dementia. I really appreciate what they have done so far and their patience. But I experience again that she receives medication without me being informed.
And it would have been so easy to have one place to keep record of this, so I have a simple overview.
Now I’m in some of the same situation with my brother.
He is not suffering from demetia, but has other challenges, which means I have to be available to help him.
BUT – A BIG DIFFERENCE – I helped him download the World Medical Card app.
In addition, I have helped him enter the medications with a note when the various are to be taken.
We have entered diagnoses, that I am the head-relative – with phone number, visual acuity and all other important information.
He has shared the app with me, so now I can easily look it up for him if he is stuck at the pharmacy, or if he is traveling and running out of medicine.
We have also loaded the travel insurance certificate, so I can make sure that he gets quick help if something should happen.
Visual acuity for each of the eyes is also there, in case he forgets it.
I often think about how much the World Medical Card app could have helped my mother and me in such a difficult situation, with all the other challenges that also arise in the wake of this disease.
And I know at least that I will ease these challenges for my children by having the app shared and available to my loved ones.